Integrating Palliative Care in Life-Limiting Pediatric Neuromuscular Conditions: The Case of SMA-Type 1 and Duchene Muscular Dystrophy

1School of Nursing, Johns Hopkins University, Baltimore, MD, USA 2Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, USA 3Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, USA 4Department of Health, Behavior & Society, Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA 5Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, USA 6McKusick-Nathans Institute of Genetic Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, USA 7Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, USA